Below are websites, literature, readings or other sources that may be helpful when conducting Indigenous health research. Please contact the Network Coordinator (bcneihr@uvic.ca) for assistance in connecting with resources.
Evaluation
- BC NEIHR Evaluation Framework (Tara Erb & Charlotte Loppie, 2022)
- Creating New Stories: The Role of Evaluation in Truth and Reconciliation (Larry Bremner, 2019)
- JRI Honouring Reconciliation in Evaluation Workshop Manual (Johnston Research Inc, 2016)
- Measuring Wellness: An Indicator Development Guide for First Nations (Bronwen Geddes, 2015)
- Participatory Evaluation: Community-based Assessment and Strategic Learning (Tamarack Institute, 2020)
- Redefining how Success is Measured in First Nations, Inuit and Métis Learning (Canadian Council on Learning, 2007)
- Reframing Evaluation: Defining an Indigenous Evaluation Framework (LaFrance & Nichols, 2010)
- The Waawiyeyaa Evaluation Tool Manual (Johnston Research Inc, 2010)
Knowledge Translation
- 6 Guidelines for Projects involving Traditional Indigenous Knowledge (Blog, 2018)
- CIHR Knowledge to Action: A Knowledge Translation Casebook (website)
- CIHR KT Publications (website)
- CIHR Understanding and Respecting the Distinct Needs of Aboriginal Communities in Research (website)
- Community-led Knowledge Translation: Experiences with Indigenous Communities (YouTube video, 27 Feb 2020)
- Effective Knowledge Translation Approaches and Practices in Indigenous Health Research: A Systematic Review Protocol (Morton Ninomiya et al., 2017)
- Indigenous Knowledge and Knowledge Synthesis, Translation, and Exchange (KSTE) (NCCIH, 2014)
- Indigenous Knowledge Sharing and Relationship Building through Narrative Storytelling and Creative Activities (Haines & Du, 2015)
- Indigenous Knowledge Translation Resources (Well Living House, 2012-2021)
- Knowledge Translation for Indigenous Communities (Hanson & Smylie, 2006)
- Research and Knowledge Sharing in the North (Alexandra Gabor, 2013)
- Sharing What We Know About Living a Good Life: Indigenous Approaches to Knowledge Translation (Smylie, Olding & Ziegler, 2014)
- Bringing the čupuc to life (YouTube video, 29 Sept 2022)
Proposal Writing
- Grant Proposal Writing Guide
- How to Write a Grant Proposal Step by Step (YouTube video, 2021)
- Micheal Smith Foundation webinars on Knowledge Translation and Grant Writing
- Proposal Development Workshop for Indigenous communities/organizations- free videos
- Writing implementation research grant proposals: Ten key ingredients (Proctor et al, 2012)
Literature Review
- Arctic Science and Technology Information System (ASTIS)
- Health Evidence (Health Evidence, McMaster University, 2021)
- JRI Principles for Literature Review (Johnston Research Inc, 2017)
- Métis Health Research Database (NCCIH, Métis Centre, NAHO)
Methodology/Methods
- Aboriginal Ways Tried and True: Aboriginal Methodological Framework for Canadian Best Practices Initiative (Public Health Agency of Canada, 2015)
- Community-Based Participatory Research: A Training Manual for Community-Based Researchers (Shallwani & Mohammed, 2007)
- Community-Based Research Modules (Trent University)
- Indigenous Research Methodologies: chuutsqa’s Story (YouTube video 3 Apr 2017)
- Participatory Research Methods with Youth (Centre for Community-based Research)
- Resource Guide: Video Collection of Training in Community Based Research (UVicSpace)
Data Analysis
- Youth-led Community-based Research: Qualitative Data Analysis Training (Centre for Community-based Research)
Data Sovereignty
- A First Nations Data Governance Strategy (FNIGC, 2020)
- BC First Nations Data Governance Initiative (BCFNDGI, website)
- Collaboratory for Indigenous Data Governance (website)
- Data and Information Governance: A Case Study Report (FNHA, Province of BC, ISC, 2019)
- Data and Information Management: Policies and Procedures to Manage and Protect Data (BC First Nations Data Governance Strategy Engagement Sessions- materials)
- Data and Information Management: Policies and Procedures to Manage and Protect Data (BC First Nations Data Governance Strategy Engagement Sessions- webinar)
- Data Governance and Management Toolkit for Self-Governing Indigenous Governments (website)
- Data Governance: Government to Government Data Quality and Sharing Agreements (BC First Nations Data Governance Strategy Engagement Sessions- materials)
- Data Governance: Government to Government Data Quality and Sharing Agreements (BC First Nations Data Governance Strategy Engagement Sessions- webinar)
- Disaggregated demographic data collection in British Columbia: The grandmother perspective (British Columbia’s Office of the Human Rights Commissioner, 2020)
- First Nations Data Sovereignty in Canada (FNIGC, 2019)
- First Nations Information Governance Centre (FNIGC, website)
- FNHA Data Governance Engagement Sessions (YouTube video, 15 Jul 2016)
- FNHA Data Management (FNHA, website)
- FNHA Health Information Governance (FNHA, website)
- Global Indigenous Data Alliance (GIDA website)
- Indigenous Data Sovereignty and DRIPA: Asserting Data and Intellectual Property Ownership (BC First Nations Data Governance Strategy Engagement Sessions- materials)
- Indigenous Data Sovereignty and DRIPA: Asserting Data and Intellectual Property Ownership (BC First Nations Data Governance Strategy Engagement Sessions- webinar)
- Indigenous Data Sovereignty: Toward an Agenda (Ed. Kukutai & Taylor, 2016)
- Nindokiikayencikewin: to seek learning or Knowledges – Indigenous Knowledges & Data Governance Protocol (Indigenous Innovation Initiative, 2021)
- OCAP, First Nations Information Governance Committee (National Aboriginal Health Organization, 2007)
- The Backdrop for Development of First Nations Peoples’ Data Governance and Health Indicators (YouTube video, 12 Aug 2016)
- The CARE Principles for Indigenous Data Governance (Carroll et al., 2020)
- Understanding the First Nations Principles of OCAP™: Our Road Map to Information Governance (YouTube video 22 Jul 2014)
- United States Indigenous Data Sovereignty Network (website)
Ethics
- A New Era of Indigenous Research: Community-based Indigenous Research Ethics Protocols in Canada (Hayward, Sjoblom, Sinclair & Cidro, 2021)
- Best Practices to Support the Self-Determination of Indigenous Communities, Collectives, and Organizations in Health Research through a Provincial Health Research Network Environment in British Columbia, Canada (Erb T, Stelkia K, 2023)
- CIHR Guidelines for Health Research Involving Aboriginal People (CIHR, 2013)
- Government of Canada: TCPS 2 Chapter 9 Indigenous Research Ethics (Government of Canada, 2019)
- Internal Summary Report: BC Research Ethics Board Environmental Scan & Ethics Sharing Circles
- Kahnawá:ke Schools Diabetes Prevention Program (KSDPP) Code of Research Ethics
- OCAP and Information Governance (FNIGC, website)
- Principles of Ethical Métis Research (Métis Centre, NAHO)
- UBC Behavioural Research Ethics Board (BREB): Indigenous Research and Ethics Review (UBC, website)
- Weaving First Nations, Inuit, and Métis principles and values into health research processes (Mashford-Pringle A, Hiscock C, Rice EJ, Scott B, 2023)
- “What Do They Really Mean by Partnerships?” Questioning the Unquestionable Good in Ethics Guidelines Promoting Community Engagement in Indigenous Health Research (Brunger & Wall, 2016)
- Willie Ermine: What is Ethical Space (YouTube video, 30 Aug 2011)
Indigenous Sex and Gender (ISG)
- Alternative genders in the Coast Salish world : paradox and pattern (Young, 1999)
- A recognition of being: Reconstructing native womanhood (Anderson, 2001, 2016)
- A Two-Spirit Journey: The Autobiography of a Lesbian Ojibwa-Cree Elder (Chacaby & Plummer, 2016)
- Indigenous feminisms in Canada (Suzack, 2015)
- Indigenous men and masculinities studies: An emergent field (Anderson & Innes, 2015)
- Indigenous overrepresentation in the justice system (Department of Justice Canada, 2017)
- Journey of Indigenous Gender Identity (YouTube video, 8 Nov 2014)
- Love After the End: An Anthology of Two-Spirit and Indigiqueer Speculative Fiction (Ed. Whitehead, 2020)
- Making Kin not Population: Reconceiving Generation (Ed. Clarke & Haraway, 2018)
- Making Love and Relations Beyond Settler Sex and Family (Ed. Clarke & Haraway, 2018)
- Meet the Methods Series: “What and who is Two-Spirit?” in Health Research (CIHR, 2020)
- On Decolonizing Sexuality through Critical Polyamory (Kim Tallbear, podcast)
- On Reviving Kinship and Sexual Abundance (Tallbear, 2020)
- Our Stories: First Peoples in Canada (Open Library)
- Regalia: Pride in Two Spirits (YouTube video 15 Nov 2015)
- Sex-discrimination in the Indian Act addressed again: Descheneaux and Yantha (Anishinabek News, 2016)
- Sovereign Erotics: A Collection of Two-Spirit Literature (Ed. Driskill et al., 2011)
- Spaces between Us: Queer Settler Colonialism and Indigenous Decolonization (Morgensen, 2011)
- “Two Spirit” – Injunuity (YouTube video, 11 Nov 2013)
- Woman wins 32-year fight for Indian status; argued rules were discriminatory (CBC News, 2017)
- Women are supposed to be the leaders’: intersections of gender, race and colonisation in HIV prevention with Indigenous young people (Oliver et al., 2015)
Allyship
- BC NEIHR Allyship: Consensual, Critical, and Active (YouTube video, October 2022)
- BC NEIHR Allyship: Consensual, Critical, and Active Worksheet
- Steps Toward Allyship (YouTube video, May 2023)
- Steps Towards Allyship Worksheet
Indigenous Cultural Safety
- BC NEIHR Indigenous Cultural Safety in Research (ICSR) Framework (Tara Erb & Charlotte Loppie, 2022)
- Anti-Racism Education in Canada: Best Practices (Centre for Race and Culture)
- British Columbia Institute of Agrologists’ List of Indigenous Training Courses Currently Available (website)
- First Nations Health Authority: Cultural Safety and Humility (FNHA, website)
- First Peoples Group (website)
- Indigenous Community Research Partnerships Training (Queen’s University)
- Indigenous Cultural Safety and the Peer Review Process (BC NEIHR YouTube 16 May 2022)
- Indigenous cultural safety: a new way toward wellness (YouTube video 7 Nov 2019)
- Indigenous Perspectives Society – Centre of Excellence in Community Education – Cultural Perspectives Training (website)
- Indigenous Reconciliation Group (website)
- Nahanee Creative (mini-courses)
- National Indigenous Cultural Safety (ICS) Learning Series (webinar series)
- Pathways to Indigenous Equity: An Indigenous Lens on Health Systems Transformation & Research (YouTube video 3 May 2021)
- Public Health Training for Equitable Systems Change (PHESC) – New Respect Indigenous Cultural Safety (website)
- San’yas Indigenous Cultural Safety Training (PHSA)
- Wabano Centre’s Indigenous Cultural Safety Training (website)
Indigenous Research Agreements
Community-Based Research Examples
- Indigenous Voices in Psychedelic Therapy: Experiential Learnings from a Community-Based Group Psychedelic Therapy Program (Manson E, Ryding E, Taylor W, Peekeekoot G, Gloeckler SG, Allard P, Johnny C, Greenway KT, Dames S, 2023)
Peer Review
- An Introduction to Peer Review (a course offered by Clarivate Web of Science; registration and enrollment are free and the course takes approximately 30 minutes to complete)
UBC
- Indigenous Research Support Initiative (IRSI)
- The First Nations House of Learning, Longhouse
- UBC Learning Circles
UVic
- Centre for Indigenous Research and Community-led Engagement (CIRCLE)
- First Peoples House
- Indigenous Student Support Centre
- Native Students Union
UNBC
SFU
TRU
Reports
- 2005 Transformative Change Accord
- 2011 British Columbia Tripartite Framework Agreement on First Nations Health Governance
- In Plain Sight (full report): Addressing Indigenous-specific Racism and Discrimination in BC Health Care
- Truth and Reconciliation Commission of Canada’s final report
- United Nations Declaration on the Rights of Indigenous Peoples
Podcasts
- Ancestral Science
- BC NEIHR: Research DE-Colonized: Ethical, Indigenous-Led Health and Wellness Research in Canada
- Indian Residential School History and Dialogue Centre: Love, Land & Spirit
- National Collaborating Centre for Determinants of Health: Mind the disruption
Additional Online Resources
- Academic Writer Tutorial: Basics of seventh edition APA style (American Psychological Association, 2020)
- A Guide to the Pronunciation of Indigenous Communities and Organizations in BC
- Ahousat’s First Diabetes Wellness Retreat (2024): tee cha chitl “getting well again |to come alive” (YouTube video)
- Aims and Objectives – A Guide for Academic Writing
- BC Assembly of First Nations
- BC Stats
- BC SUPPORT Unit Indigenous knowledges for decolonized research and evaluation practices – Environmental scan of Indigenous engagement guidelines for health research and program evaluation
- Carrier Sekani Family Services: Research and Development for Researchers
- ECO Canada Indigenous Training for Environmental Careers
- eMentoring BC
- Developing a Research Question (YouTube video)
- Developing a Qualitative Research Question (YouTube video)
- Greenway Trails for All 2021: Identifying the inequities of active transportation in rural BC
- Health Inequalities and Social Determinants of Aboriginal Peoples’ Health (Reading & Wien, 2009, 2013)
- Indigenous Peoples and the Law (webinar series)
- Indigenous Services Canada
- Indigenous STEAM: land-based educational materials developed in collaboration with families, communities, educators and researchers
- National Collaborating Centre for Indigenous Health (NCCIH)
- Perspectives on Patient-Oriented Research: Indigenous Perspectives (YouTube video, 4 Mar 2020)
- Repatriation in Canada: A Guide for Communities (Bourgeois, 2021)
- Research Administration Certificate – 988 (Mohawk College Certificate- Online)
- Signal Fire: 10 Calls to Action to Natural Scientists Working in Canada (Documentary)
- Statistics Canada
- Supporting Indigenous Graduate Student Health Research Capacity: Mentorship Through a Provincial Health Research Network Environment in British Columbia, Canada (Erb, Stelkia, Hancock, Sims, Adams, Caron & Reading. 2024)
- Tending the Wild (PBS Documentary)
- The Bison Cultural Project (Documentary)
- Transformative Networks: How ACADRE/NEAHR Support for Graduate Students has Impacted Aboriginal Health Research in Canada (Richmond, Martin, Dean, Castleden & Marsden, 2013)
- Tri-Agency Policy on Indigenous Citizenship and Membership Affirmation
- Yellowhead Institute