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Illness Narratives

People and families experiences of living with a chronic illness

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Posted on July 8, 2015October 2, 2019 by Marcy Antonio

Stories Shared from People Living with Chronic Kidney Disease

We have created a booklet on the experiences people shared of Living with Kidney Disease

 

CategoriesIllness narratives, Kidney Disease, Resource

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About Our Research

Advances in science and healthcare have allowed people with life-limiting chronic illnesses to live longer and healthier lives. Yet, outcomes of treatment are often uncertain. People often live with the possibility of their illness reoccurring and progressing.

Our research has focused on experiences of living with a life-limiting illness. Over a series of multiple interviews, we met with patients and families living with HIV, cancer, chronic kidney disease, chronic lung disease, or heart failure. The researchers from the University of Victoria and the University of Alberta extend our appreciation to the participants who have shared their stories.  

Recent Posts

  • Ten minutes to midnight: a narrative inquiry of people living with dying with advanced COPD and their family members.
  • Life and priorities before death: A narrative inquiry of uncertainty and end of life in people with heart failure and their family members
  • Holding secrets while living with life-threatening illness: Normalizing patients’ decisions to reveal or conceal.
  • Qualitative data management and analysis within a data repository
  • Symposium at the Qualitative Health Research Conference in Vancouver: Creative approaches to knowledge translation: Translating narrative findings of death and dying

Categories

  • Arts-Based
  • Cancer
  • Conference Presentations
  • COPD / Lung Disease
  • Dyads
  • Friends and Families
  • Heart Failure
  • HIV
  • Illness narratives
  • Journal Publications
  • Kidney Disease
  • Knowledge Translation
  • Living with a Chronic Illness
  • Metaphors
  • Methodology
  • Narrative Inquiry
  • Narratives
  • Perceptions of Death and Dying
  • Re-storying
  • Resource
  • Spirituality
  • Uncategorized
  • Uncertainty
  • Unsayable

Collaboration of:

 

Our study was supported by:

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